IN THE SPOTLIGHT

HOPE Summit

HOPE Summit

Rockville, MD

Make friends and get savvy about life with lung cancer! Each year, LUNGevity Foundation brings together patients and caregivers to build friendships and learn from reliable experts in the lung cancer community.  This positive and hopeful environment, aptly named HOPE Summit, will take place from May 5-7, 2023, in Rockville, MD. And registration is free!   This year, LUNGevity is pleased to announce that Julie Larson, a licensed clinical social worker with a focus on helping people living…

Let Your Voice Be Heard!

Let Your Voice Be Heard!

We are collecting stories from patients, caregivers, friends, and family members! Tell us how lung cancer has affected your life. Email your story to us at support@lungevity.org. Thanks!  

Finding Clinical Trials for Lung Cancer: Tools and Resources

Finding Clinical Trials for Lung Cancer: Tools and Resources

Clinical trials are an important option for patients because the newest treatment approaches, not available otherwise, are being tested in them. Clinical trial research leads to more advancements and potential treatment options, and the therapies used today were once tested in clinical trials. Continued progress is only possible if patients with lung cancer volunteer to participate in the clinical trial process.  There are many ongoing clinical trials testing new lung cancer treatments,…

The Importance of Follow-up Screening

The Importance of Follow-up Screening

Terri Ann DiJulio, a long-time lung cancer survivor who has overcome three lung cancer diagnoses, talks about the importance of follow-up screenings for lung cancer, family history considerations, and shared decision-making.  The webinar is hosted by Amy Moore, PhD, LUNGevity’s VP of Global Engagement and Patient Partnerships.

Fuel for the Future: Good Nutrition for the Lung Cancer Community

Fuel for the Future: Good Nutrition for the Lung Cancer Community

Learn valuable information about good nutrition that can help you live well through lung cancer treatment and beyond. Gain insight and tips from Oncology Dietitian Lori Bumbaco, MS, RDN, CSO, as she shares her expertise in an interactive presentation and answers nutrition questions from the community. Then watch a live cooking demo, where Lori prepares a healthy meal and snack and shares recipe ideas and cooking tips. You’ll also hear about additional support programs and resources for the…

Real-World Drug Development at the Targeted Therapies of Lung Cancer Meeting

Real-World Drug Development at the Targeted Therapies of Lung Cancer Meeting

The development of new treatments for any disease relies on the collaborative efforts of many different stakeholders, such as scientists, clinicians, patient advocacy groups, regulators, and pharmaceutical and biotech companies. During scientific conferences that happen throughout the year, stakeholders cobble together opportunities to discuss the current state of treatments and strategize ways to bring emerging lifesaving treatments to patients. Each year, there is one key conference…

Emotional Care for the Whole Family

Emotional Care for the Whole Family

A diagnosis of cancer has an impact on the entire family. Emotional support from family and friends can make a significant difference to the experience of survivorship, but knowing when, how, and in what way to offer support can be a challenge to figure out.  You may feel awkward and unsure about what to say. The moods and needs of the survivor and primary caregivers may change from moment to moment, making it hard to know when to step in. You may be balancing respecting their privacy with…

The Healing Power of Stress, with Mike Verano

The Healing Power of Stress, with Mike Verano

Mike Verano is a cancer survivor, author, and counselor with over 28 years of experience in the mental health field. Mike joins LUNGevity's Angela James to share concepts from his latest book, The Healing Power of Stress, as they relate to the caregiving experience, including a discussion on a concept he calls "posttraumatic caregiving." You can purchase Mike's book and find his other titles on Amazon.

Ask Your Oncologist the Right Questions

Ask Your Oncologist the Right Questions

Communication is critical to a positive doctor-patient relationship. Knowing the right questions to ask helps ensure you leave your appointments with the information and answers you need. Being prepared may also lessen anxiety and help provide a sense of control. Meeting with your oncologist, especially when first diagnosed or deciding on a treatment plan, are times when being prepared with questions is necessary.   LUNGevity has downloadable lists of questions that you can bring to…

For Caregivers: How to Support Your Loved One at Appointments

For Caregivers: How to Support Your Loved One at Appointments

Doctors' appointments are critical junctures in your loved one's lung cancer journey. They are a time to gather information and ask questions. We have created a list of tips for caregivers so that you feel prepared for your loved one's appointments, especially if you are new to the role.    Ask your loved one how they would like you to support them. It is important to honor your loved one's autonomy, and establishing what they want and need from you is key. Your role may start as note-taker,…

Innovative Research Brings Potential New Class of Drugs for Patients with ALK-EML4 Fusion

Innovative Research Brings Potential New Class of Drugs for Patients with ALK-EML4 Fusion

Targeted therapies, or treatments directed towards specific biomarkers in tumor cells, have been effective in treating many patients with advanced-stage non-small cell lung cancer (NSCLC). Tumors that have the ALK protein fused with another cancer-driving protein, such as the EML4 protein, are often referred to as ALK-positive tumors. Approximately 5% of advanced-stage adenocarcinoma, a type of NSCLC, will test positive for an ALK-fusion biomarker. Treating patients with ALK-positive lung…

Thriving with Cancer, with Dann Wonser

Thriving with Cancer, with Dann Wonser

Dann Wonser, a 16-year lung cancer survivor and author of the book Second Wind – Thriving with Cancer, joins LUNGevity's Angela James to share learnings from his cancer journey and the tactics he's used to not only survive but thrive with lung cancer. Visit Dann's website to read his blog or purchase your own copy of Second Wind - Thriving with Cancer at www.dannwonser.com.

Healing is an Art, with Genevieve De Renne

Healing is an Art, with Genevieve De Renne

Genevieve De Renne is a caregiver and artist whose artwork has been featured on the cover of three recent issues of the Journal of Oncology Navigation & Survivorship. Genevieve joins LUNGevity's Angela James to share insights from her experience as a caregiver, especially how her art has helped her maintain purpose and power during her husband's lung cancer journey. You can view Genevieve’s cover art on the October, November, and December 2022 covers at www.jons-online.com/art-gallery.

Processing Grief, with Lois Hall

Processing Grief, with Lois Hall

Lois Hall is a practitioner and trainer in the Grief Recovery Method, an evidence-based program that helps individuals heal and process the emotional pain associated with grief. Lois joins LUNGevity's Angela James to discuss how all people are grievers and that hope for healing exists for us all. You can learn more about Lois at www.griefrecoverymethod.com/grms/lois-hall and access a free Grief Recovery Handbook at offers.griefrecoverymethod.com/two-step-order1614201563532.

One Patient's SCLC Journey

One Patient's SCLC Journey

Learn about small cell lung cancer through the eyes of a patient and his oncologist. Dr. Christine Lovly, internationally recognized medical oncologist, and Jeff Lackey, an SCLC survivor, discuss their journey, the importance of lung cancer screening, and key considerations when someone is newly diagnosed.  This session is moderated by Amy Moore, PhD, LUNGevity's Vice President of Global Engagement and Patient Partnerships. Christine M. Lovly, MD, PhD, is Associate Professor of Medicine and co…

Shared Decision-Making, Self-Advocacy, and Dealing with Financial Toxicity

Shared Decision-Making, Self-Advocacy, and Dealing with Financial Toxicity

Cardinale Smith, MD, PhD, oncologist and associate professor at the Icahn School of Medicine at Mt. Sinai, explains how shared decision-making with one's healthcare team can create a treatment plan that aligns with the patient's goals. This activity is supported by an educational grant from Jazz Pharmaceuticals, Inc.

The Benefits of Palliative Care for People Living with Lung Cancer

The Benefits of Palliative Care for People Living with Lung Cancer

Palliative care is supportive care that anticipates, prevents, and treats the symptoms and side effects of the disease and its treatment. It is intended to improve one's quality of life and can be addressed at any stage from diagnosis forward. This webinar features Estelamari Rodriguez, MD, MPH, thoracic oncologist at the Sylvester Comprehensive Cancer Center at the University of Miami. This activity is supported by an educational grant from Jazz Pharmaceuticals, Inc.

Raise Your Voice: Speaking Up About Living With Lung Cancer

Raise Your Voice: Speaking Up About Living With Lung Cancer

An online panel discussion offers real-world suggestions and examples for ways to get the care and support you need. The discussion features Angela James, LUNGevity care navigator;  Lavern McDonald, a teacher living with lung cancer; and Patricia Simmers, a nurse navigator. The panelists share their personal stories, challenges, and lessons learned through their journeys with lung cancer. This panel discussion was hosted by LUNGevity in collaboration with Novartis.

Science Spotlight: NSCLC Transformation into SCLC

Science Spotlight: NSCLC Transformation into SCLC

Take a behind-the-scenes look at how researchers study lung cancer. Join lung cancer researcher Triparna Sen, PhD, as she digs into what’s known about how EGFR-positive NSCLC cells transform into SCLC to escape targeted therapy treatment. SCLC transformation is a common resistance mechanism for multiple types of NSCLC, including EGFR, ALK, and RET. This Facebook Live event is hosted by Amy Moore, PhD, LUNGevity’s Vice President of Global Engagements and Patient Partnerships. Dr. Sen is Co-…

How Metastatic Brain Tumors Affect Your Lung Cancer Care

How Metastatic Brain Tumors Affect Your Lung Cancer Care

Brain metastases are known to occur in approximately 25% of patients diagnosed with lung cancer. This webinar dives into the details of brain metastasis in lung cancer to explore their signs and symptoms. It also includes a discussion of treatment considerations. Through this webinar, you will learn to: Understand how brain metastasis occurs Keep an eye out for signs & symptoms of brain mets Understand treatment options and management techniques This webinar was created in partnership…

Understanding Pulmonary Rehab

Understanding Pulmonary Rehab

Pulmonary rehab expert Debbie Koehl, MS, RRT-NPS, AE-C, FAARC, speaks to LUNGevity's Survivorship Navigator, Kristi Griffith, to explain what pulmonary rehabilitation is, explore the benefits of pulmonary rehabilitation, and gain key insights about how to obtain pulmonary rehabilitation for yourself or a loved one. The discussion is followed by an informal Q&A with other lung cancer survivors. This recording was made during one of LUNGevity Foundation's Virtual Meetups -- a free resource…

Pneumonitis: A Common Side Effect

Pneumonitis: A Common Side Effect

In this video, nurse practitioner Lauren Welch, MSN, NP-C, AOCNP, from the Sarah Cannon Research Institute at Tennessee Oncology offers a quick review of pneumonitis - a common side effect of some lung cancer treatments. Survivors and caregivers can learn: What is pneumonitis? What causes it? How is it treated? What symptoms should we look out for?

Celebrate Lung Cancer Awareness Month

Celebrate Lung Cancer Awareness Month

Every fall, the lung cancer community gathers to raise awareness for this disease and stand together – unified and strong. November is Lung Cancer Awareness Month – a time to come together to celebrate the strength of the lung cancer community. A great way to get involved in raising awareness about lung cancer is by joining us on Saturday, November 5 for our nationwide walk - Breathe Deep TOGETHER  presented by Amgen. Thousands of people from across the country, coming together in a singular…

Get the Answers You Need

Get the Answers You Need

Whether you are newly diagnosed or a long-term survivor, LUNGevity offers lung cancer support and survivorship services to address your unique needs. LUNGevity's services are designed to help you feel supported, informed, and empowered to be an active decision-maker in your treatment process and live well with the disease.   LUNGevity's survivorship services are free and feature programs for survivors, caregivers, and family members. Read on to learn about our offerings and how you can access…

Introduction to Radiation Therapy

Introduction to Radiation Therapy

Lung cancer survivor Jill Feldman joins radiation therapy experts Drs. Drew Moghanaki and Kristin Higgins to provide an overview of radiation therapy – including discussions of when this treatment is recommended, how the treatment is administered, and which side effects are most common.

Caregiver Starter Kit: 5 Resources

Caregiver Starter Kit: 5 Resources

Navigating a lung cancer diagnosis can feel overwhelming not only to the patient but to their caregiver as well. It’s normal to feel lost or confused and not know where to start or what resources to ask for. Because a cancer diagnosis is a family diagnosis, LUNGevity wants caregivers to know they don’t have to go through it alone. There are resources available to help caregivers take care of their loved ones as well as themselves. Here are 5 important caregiver resources to help with your loved…

What to Expect When Diagnosed with ALK+ Lung Cancer

What to Expect When Diagnosed with ALK+ Lung Cancer

In this presentation, Upal Basu Roy, PhD, MPH, LUNGevity's executive director of research, speaks with Justin Gainor, MD, about what people with newly diagnosed ALK-positive lung cancer should know.

World Lung Cancer Day and the Changing Landscape of Lung Cancer

World Lung Cancer Day and the Changing Landscape of Lung Cancer

For decades, lung cancer was synonymous with low survival rates, limited treatment options, and poor quality of life for those living with the disease. Each year, more than 236,000 people in the US are diagnosed with lung cancer. The high incidence of lung cancer means scientific research into new therapies is critical, both for current survivors and those who will be diagnosed in the future. Thankfully, the landscape of lung cancer is changing for the better. Due to progress in research and…

Key Findings from ASCO 2022

Key Findings from ASCO 2022

Upal Basu Roy, PhD, MPH, LUNGevity's Executive Director of Research, speaks with Charles Rudin, MD, PhD, about the key findings from the recent meeting of the American Society for Clinical Oncology (ASCO) and what they mean for the lung cancer community.

We're Live-Tweeting from ASCO June 3-7!

We're Live-Tweeting from ASCO June 3-7!

LUNGevity’s Dr. Upal Basu Roy and Dr. Amy Moore will be live-tweeting from the American Society of Clinical Oncology (ASCO) annual meeting. Follow LUNGevity on Twitter and the hashtags #ASCO22 and #LCSM to be a part of the action. Times and topics of live-tweeted sessions are as follows: Fri, Jun 3, 2022 | 2:00 PM – 5:00 PM EDT | Lung Cancer—Non-Small Cell Metastatic  Sun, Jun 5, 2022 | 9:00 AM – 10:15 AM EDT | Treatment Sequencing in Resectable Lung Cancer…